ORGANIZACIONES SINDROME DE ANGELMAN EN EL MUNDO
Alemania
Argentina
Australia
Austria
Bélgica
Brasil
Canadá
Chile
China
Dinamarca
Estados Unidos
Finlandia
Francia
Holanda
Irlanda
Israel
Italia
Luxemburgo
México
Noruega
Nueva Zelanda
Reino Unido
Suecia
Alemania
Deutsche Angelman E.V.
Herr Heinz Bewersdorf, Präsident
Prettauer Pfad 8
12207 Berlin
Telefon: (030) 817 84 38
Fax: (030) 614 91 72
Asociación Síndrome de Angelman de la República Argentina
Familia de contacto:
Adela Gentili de Montepagano
Alberto Montepagano
Dirección:
Pje. Enrique de Vedia 2193
Capital Federal
C.P. 1417
República Argentina
Tlf. 4567-7747
e-mail apsa_info@hotmail.com
Web:
http://www.sindromedeangelman.org.ar/
Dirección del foro habla hispana:
http://boards1.melodysoft.com/app?ID=angelman
Australia
Angelman Syndrome
Association
PO Box 554
Sutherland
NSW 2232
Australia
Tel: ( 02 ) 95205857
Contacto: Kevin Kennedy
email: kevink@netspace.net.au
web site: http://www.australianholidays.com/asa/asahome.htm
Angelman Syndrome Association of South Australia
P.O. Box 2025
South Plympton SA 5038
Tel. / Fax (08) 8371 4255
Austria
Walter & Sharon Steindl
Landstrasse Hauptstr 33/1/7
A-1030 Vienna, Austria
Bélgica
Angelman Stichting België
Bernard Lorand, secr. - Patrick Haverbeke, voorzit.
Stephensonstraat 108
1000 Brussel
België
tel.: Patrick Haverbeke (voorzit.) +32 2 3755237 na 20 u.
Bernard Lorand (secr.) +32 2 6732754 na 20 u.
Brasil
Associação Sindrome de Angelman (ASA-Brazil)
Marcelo Castro da Silva
marcelo@jubilee.com.br
http://asa.netway.com.br/
Canada
Canadian Angelman Syndrome Society
PO Box 37
Priddis
Alberta
TOL 1WO
Canada
Tel: (403) 9312415
Contact: Janet Carscallen
email: cass@cadvision.com
Asociación Síndrome de Angelman de Chile
Bulnes 530
Los Angeles, VIII Region
Teléfono: 56-43-315952
Contacto: Paola Claramunt Jara
China (Hong Kong)
Choi San Chueh
Room A, Block 39
16/F, Broadway
Mei Foo Sun Chuen
Kowloon, Hong Kong
Dinamarca
Angelmanforeningen I Danmark
Østerskovvej 18
DK-4682 Tureby
DENMARK
Phone: +45 56 28 51 68
Chairman: Kristiann Nicolaisen
email: angelman@angelman.dk
Web Site: http://www.angelman.dk
Estados Unidos
Angelman Syndrome Foundation, USA
National Office
414 Plaza Drive, Suite 209
Westmont, IL 60559
Phone: 800-IF-ANGEL (800-432-6435)
International Calls: 630-734-9267
Fax: 630-655-0391
email: asf@asihq.com
Web Site: http://www.angelman.org
Finlandia
Finnish Angelman Syndrome Society (FASS)
c/o Tuula Rauhamäki
Haukkamäentie 4 C 21
FIN-40270 Palokka
Finland
Phone: 0500-679 464 (national)
+358-500-679464 (international)
Web Site: http://www.kvtl.fi/angel
Francia
Association Francaise Du Syndrome d'Angelman
L' Antouas
04200 Vaumeilh
France
Tel: 92 621492
email:afsa.bj@alpes-net.fr
Contact: Blaise Jankowski
Web Site: http://orphanet.infobiogen.fr/associations/AFSA/AFSA.html
Holanda
AS Contact: Brigitte Baijens
Tel 047 5487116
Irlanda
AS Contact
Mrs. Rosemary Teggin
51 Springhill Park
Killeney, County Dublin
Ireland
e-mail: rosemaryteggin@tinet.ie
Israel
EITAN (umbrella organization)
contact person: Shabtai Satlow
e-mail: satlow@ndc.co.il
e-mail: satlow@indsisrael.com
P.O. Box 23012, Har Hotzvim
Jerusalem, 91235, Israel
972 (2) 589 4626
Italia
O.R.S.A
(Organizzazione Sindrome di Angelman)
Via Montello, 4/b - TREVISO
Tel. Fax 0422/421643
Napoli (Tommaso Prisco)
Fax 081/8657037 - Tel. 0336/949334
email: orsa@netgroup.it
website: http://www.netgroup.it/medico/orsa/
Luxemburgo
Patrick Haverbeke
50 rue de la Toison d'or
L-2265 Luxembourg
Tel: 352-2118-9654
email: patrick.haverbeke@ferrero.com
Fundación Angelman de México
Bosque de Cidros #110 Depto. 702
Bosques de las Lomas
México D.F. C.P. 11700
e-mail es: pingosmontessori@aol.com.mx
Nueva Zelanda
AS Contact
Mrs. Nikki Hereaka-Hall
36 O'Hara Street
Invercargill, New Zealand
0321-89196
Brenda & Philip Morgan
177 Colombo Road
Masterton, New Zealand
Noruega
Norwegian Foundation for Angelman Syndrome
(Norsk Forening for Angelmans Syndrom, NFAS)
website: http://home.sol.no/~hevo/nfas/
c/o Helge Voland
Hubroveien 15
N-4042 Hafrsfjord
Norway
Telephone: 5155 7702
e-mail: hevo@online.no
Suecia
Angelmans Syndrom Föräldrarförening (ASF)
contact person: Inga-Carin Kindstrand
mail address: Kyrkotorp 6304
SE-434 96 Kungsbacka
e-mail contact: Annette Lack
e-mail address: annette.lack.fk@metall.se
Reino Unido
Angelman Syndrome Support Group
15 Place Crescent
Waterlooville
Portsmouth
Hampshire
PO7 5UR
U.K.
Tel:01705 264224
Contact: Sheila Woolven
email address: aangelman@aol.com
ASSERT (Angelman Syndrome Support Education & Research Trust)
PO Box 505
Sittingbourne
Kent
ME10 1NE
Telephone Families 01980 652617
Telephone/Fax Professionals 01795 429061
Jim Brennan
e-mail: hj.brennan@virgin.net
Sally Walburn
email: Sally.Walburn@tesco.net
